Friday, January 15, 2010

MDS Becomes AML - Chemotherapy Day 5?

I've lost track of what day this is. Other than it being Friday. And I only know that because the white board, on which the nurses write their names as they come on duty, says so.

So, this may be Day 5.

Yesterday the counts were odd:
  • Platelets 8,000
  • Hemoglobin: 7.something
Today, the counts are up:
  • Platelets 10,000
  • Hemoglobin: 8.4
Some (all?) of those gains are no doubt due to my receiving a unit of transfused platelets and two units of what is apparently now called "packed red cells." I guess whole blood is no longer used in transfusions.

Either way, there's nothing external to show for this. The fatigue still rules and the ability to stay upright for more than half an hour remains a challenge.

We have, as I write, 54 more hours of chemo-drip. But, who's counting?

Food, too, is becoming a challenge. The stuff here is repetitive and close to inedible. Consider, additionally, that dinner arrives at 4:45 p.m., way too early to be eaten. But, if it's a hot meal, it's already lukewarm when it arrives.

But, hey—I've been to summer camp. I know how to handle bad food.

You bring in good stuff from the outside.

Laina came to the rescue with some Chinese take-out last night. Cashew chicken and shrimp fried rice. This after I'd had a vivid dream about eating fried rice. So, we're making a policy—dinner will be delivered.

It's the little things that are going to be me through this.

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