Wednesday, August 19, 2009

More MDS & Travel Fatigue Sets In

Five days on the road, and the message has been brought home once again—when traveling with Vidaza-treated MDS, you'd better schedule time for a nap.

Of course, it would be easier to handle the fatigue situation if this patient could sleep on airplanes. Unfortunately, the only time that's been achieved has been when flying internationally in first class cabins equipped with flat-bed seats. And, needless to say, that was only experienced on someone else's dime on a non-domestic airline.

So, flying from NJ to CA on Friday yielded no sleep.

And, charging from one family gathering to the next yielded no naps.

Thus, three days went by without naptime. By Monday, full exhaustion had set in and, after a half-day of sightseeing, this boy collapsed into mid-afternoon bed, passing out for a full 2-plus hours.

And still managed to sleep a full 8 hours that night.

Alas, yesterday, the vicious cycle began again. Even though the flying took only an hour, we'd left so much time for getting to the airport (stung by, and wary of, the horrendous Calif traffic), and we required so much time to get from the arrival airport to grandma's house (embroiled in Calif traffic), that naps weren't in the cards.

Today, however, will be a different story. Out of bed at an ungodly hour to complete an assignment due by mid-morning eastern time (no—I didn't wait til the last minute; the work came in whilst I was in flight on Friday; a very short lead time, indeed), I've completed the task and fully intend to sleep it off this afternoon.

It's clear that multiple non-nap days are not a god idea. Now, I just have to remember that—and so something about it.

No comments:

Post a Comment